Make a donation, and give a survivor the gift of the Brain Injury Identification Card.
No two brain injuries are alike, that's what makes it so difficult. Brain injuries change everything, from being properly diagnosed to treatment that is effectively tailored specifically to that person, taking into account their OWN individual injury. There's so much information that isn't currently available and most doctors have little to no knowledge.From now on you/they should ask this question first, "Do you have any patients or have you treated anyone with TBI?" If they say "No", or "What is TBI?", then move on to the NEXT doctor.
First thing's First: Breathe, You Are NOT Alone.
- The first thing you tell a doctor is that you have had a traumatic brain injury, so the most effective protocol can be established. If your doctors do not have experience in treating TBI or currently treating patients . Please , Please take my advice and find one that does. This can save you time, money and often misdiagnoises.
- Remember we know little about the brain: as much as we do the ocean, so don't be the patient where the doctor is learning what TBI involves. "TBI"-Truamatic Brain Injury, "BI"- Brain Injury, ABI- Acquired Brain injury in is JUST Now becoming into the world with a name. Per our history in the field of medicine Brain Injury as been treated symptomatically, thus not being treated or diagnosed properly.
- Create a team and network you will need to cover all aspects of your emotional, spiritual, financial and physical needs. Allot of care will need to be long term which usually a survivor and family is not prepared for or have the means. There are several areas in recovery that, well its not going to be days, weeks, but years. This is a condition you will need help
- Get as much knowledge so your able to be your own advocate.
- NEVER go to the Doctor alone. You need to ask permission to record or have someone take notes for you because you will forget. Caregivers and family, You will get overwhelmed and simply shut down, you always need to make a chain of events, daily log. Doctors will change.
- Make sure you always take notes and ask for a copies of your medical information so you can start understanding your brain, your injury, and your recovery.
- Keep track of every thing you are feeling and doing even something as simple as "the air smells different today" is important.
- Seek out and join a a local support group. GO! Introduce yourselves as friends caregivers,survivors,etc. It will be the BEST source for questions, support, connection both medicinally and emotionally.
- Get a mentor so they can help facilitate and communicate care and treatments beyond the limited time a doctor has to spend with you. Often times you go home after long day a tests and you can remember what the doctor said and more importantly convey your recovery clearly and effectively so they can better serve you.
Brain Injury In The Media
Healing Soldiers | Revealing the Trauma of War
Thousands of soldiers and veterans are suffering from some level of traumatic brain injury (TBI), mostly as a result of exposure to blast events. See the images, the art, and learn more through National Geographic: Healing Soldiers Art & Stories
BRAIN INJURY IN FILM
t's amazing and heart reaching but for those friend and family that just don't get it, We have found that these movies that are themed around traumatic Brain Injury helps to really faint a picture, lets face it people have a hard time believing something they can not see, such has Faith. I find that this 3 main sections on this page will help family and friends understand how the life we once knew is god and creating the "New Normal" is something we must immediately to give us the best chance of functioning.